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Liam's Lighthouse Foundation

🌎 National
rare-disease support-groups peer-support parent-support hematology

⚠️ Important Disclaimer

This information is provided for informational purposes only. Cosmic Cassy is not affiliated with this organization. Please verify all details directly with the organization before relying on this information.

About This Resource

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Liam's Lighthouse Foundation provides education, awareness, and family support for children with Hemophagocytic Lymphohistiocytosis (HLH) and other histiocytic disorders. These are rare blood cancers that are often misdiagnosed because many doctors aren't familiar with them, leading to delays in life-saving treatment.

The foundation connects families facing HLH and histiocytosis through support networks and resources to help navigate these complex conditions. They work to educate physicians and hospitals about early detection and proper diagnosis, which can make the difference between life and death for children with these rapidly progressing diseases. They also promote bone marrow donor registration through Be The Match partnerships, since transplants are often necessary treatments for these conditions.

Additional Information

Services Offered:

  • educational materials
  • family support networks
  • physician education
  • bone marrow donor awareness
  • peer connections

Languages Supported:

English

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